Participating

Klinefelter Syndrome Research Study 

We are looking for boys and young teens, ages 9-12, with confirmed Klinefelter syndrome for a research study looking at the relationship between the brain and behavior. This is a longitudinal study, required a total of four annual study visits. Each visit consists of two (2-8 hour) days.

 

Participation involves a 2 day evaluation including:

  • Comprehensive physical, cognitive and behavioral evaluations
  • Brain imaging with MRI. Scans are safe, non-invasive, and do not involve X-rays. They are primarily used to look at the structures of the brain. However, because MRIs involve magnets, we cannot include anyone with metal in their bodies, like braces or other metal implants.

Inclusion criteria for participation – child must be:

  • Between 9-12 years old
  • Male

Potential benefits of participating:

  • Information from research behavioral and cognitive assessment, with a research report of the assessment results
  • Flight/hotel/ground transportation costs covered for the participating child and one care-giver/parent
  • Families will receive an honorarium of up to $100 for their participation


For more information or to enroll, contact Lara-Foland Ross (email) or Vanessa Alschuler (email):

Email: klinefelterstudy@stanford.edu

Phone: 650-497-6525


For general information about participant rights, contact 1-866-680-2906